fragilex.org Mar 16 2016
(Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders. Members of the Alliance will share experiences, knowledge and content with one another in service to the worldwide Fragile X community. The Alliance launched with 28 Fragile X parent support organizations from 24 countries on five continents. IFXA will also help to form new organizations in those countries where little or no support exists for families.